Graham’sbones were constantly dislocating due to her weakened connective tissue. Over the next few years, she enduredeight different backand brain surgeriesto fuse her spine in place and prevent her brain from sinking through her skull.
Despite this epic medical journey, Graham’s glowing spirit and determinationto make the most of her life neverwavered.
She continued her star athletic career, as both a phenomenal lacrosse and soccer player, and, just recently, was crowned “Miss White Oak.” Claiming thistitle positionedGraham one step closer to realizing her ultimate dream competing for the Miss America crown.
Keep scrolling through our gallery to learn how Grahambraved her daily pain to claim her crown and how she now uses her post to spread awareness about EDS.
Victoria Graham has led a painful life.
When she was only 10 years old, her body began experiencing ridiculously frequent shocks of pain all day long.
For the next three years, Graham’s parents shuttled her toall sorts of different doctors, looking for a miracle cure to appease their daughter’s suffering.
At age 13, Graham visited a geneticist whodiagnosed her withEhlers-Danlos Syndrome, also known asEDS.
Ehlers-Danlos Syndrome is a condition that limits the body’s collagen production.
Collagen isa keyprotein that strengthens the body’s connective tissue, which hold our bones, organs, ligaments, tendons, and so on, in place.
Without enough collagen, Graham experienced incredible flexibility, joint instability, and daily bone dislocations.
Overtime, Graham’s condition deteriorated.
Being touched, tripping on the stairs, or even stumbling on uneven pavement can cause Graham’s gentle frame to dislocate.
As she told Daily Mail, “My condition means I can dislocate any of the bones in my body, the most it’s happened is up to ten times a day.
“As well as my gut not digesting food properly and my body cannot regulate my temperature or blood pressure.
“Being ‘normal’ is difficult and usually not even a possibility.”
Since her diagnosis, Graham has had eight different surgeries, four of which have been necessary to prevent her brain from slipping through her skull and her skull from crushing her spine.
While most folks would crumble at the thought of having to endure this much time in a hospital, along withthis severe level of pain on a daily basis, Graham refuses tolet her situation prevent her from living her truth.
Despite her worsening condition, this survivor continued her legacy as a star lacrosse and soccer player all throughout school.
She scored points in every game she played while braving innumerable dislocations.
Additionally, Graham hasstarted knocking accomplishments off of her bucket list.
She’d always dreamed of competing in beauty pageants. So, just last year, she went for it and won!
Graham was crowned Miss White Oak. If she wins her next competition, she’ll be in the running to become Miss America.
This pageant queentold Daily Mail, “At my first pageant I was surrounded by gorgeous women and there was me in a neck brace.
“I’d just had four surgeries to stop my brain falling through my skull and my spine dislocating every time I move.
“I wear my crown and sash, so that I can be a voice for others with Ehlers Danlos Syndrome.”
She continued, explaining, “By entering pageants I can use my story and surgery scars as a microphone to get people thinking.
“I know full well that while I’m in my evening gown I could trip and dislocate, even someone touching me could cause it to happen, but bringing awareness to this condition makes it worth it.”
Why does Graham keep going then, even in her fragile state?
As she told the Daily Mail, “I know there’s a good chance I’ll end up needing a wheelchair because of my condition, which is why it’s all the more important for me to help others before I can’t do it anymore.”
This amazing woman continues making her dreams come true, despite her painful reality. Moreover, shevows to keep spreading impactful awareness about her condition, which willundoubtedlyhelp countless others bravesimilar journeys.
If you’d like to check out a video of Graham that she posted on Facebook, you can view it below!
What do you think of Graham’s story? Do you or a loved one suffer from EDS?Let us know in the comments!